Other diseases

National Organization for Rare Disorders (NORD)
800-999-6673
www.rarediseases.org

Office of Rare Diseases Research National Institutes of Health
301-402-4336
www.rarediseases.info.nih.gov

Madison’s Foundation
310-264-0826
www.madisonsfoundation.org

Rare Cancer, Sarcoma, or WSMG-NE mailing lists
www.acor.org